Currently more than 20,000 Members strong, the women of CANFib is Canada's True Collaborative Conduit between Patient, Research, Pharmacy, Insurance and Government.
CANFib is a Federally incorporated entity striving for better solutions through the provision of accurate information while working to educate patients regarding their Health Canada approved treatment options. From submitting information to Health Canada and Insurance firms with regard to drug approvals to working with Patients and the Pharmaceutical industry to learn from each other, CANFib stands for a collaborative approach to Information on Fibroids and Endometriosis Patients, Symptoms, Priorities and more.
CANFib Founder and administrator, Patricia Lee, attends group discussions daily to moderate discussion and educate women women as to sources of information regarding the condition of Fibroids as it pertains to treatments in Canada.
CANFib is run efficiently on a very small budget, with the majority of funds invested in education, research and documentation as well as the dissemination of information.
Funds are also allocated to work on the administration of various public and private discussion groups and the related website. Funding Partners of CANFib receive benefits in return for their greatly appreciated assistance.
CANFib Partners at Large
CANFib prides itself in being a truly collaborative entity; all members of CANFib, Pharmaceutical Firms, Government Health Bodies, Research arms and Insurance providers are Partners at Large.
CANFib regularly disseminates information from Patients to pertaining groups including, but not limited to submissions to Health Canada, Submissions to Insurance Bodies and participation in Canadian Research. These submissions assist in new drug approvals, insurance approvals and research studies.
Conversely CANFib brings to it’s members all information pertaining to advancements in treatments that are approved in Canada, new coverages and information that educates as to how medical and health systems work or information that educates women as to communicating symptomology etc.
CANFib Project Partner: 10,000.00
A project partner helps CANFib continue providing accurate and educational information as it pertains to the Condition of Fibroids and its treatment options.
Educational materials examples
- CANFib updates pamphlets and brochures regularly on the medications and treatments available to Fibroids Patients that are also approved by Health Canada for Fibroids treatment.
- CANFib regularly audits Google for "Miracle Cures" and brings to light via educational media that these are not approved treatments (and how to assess their validity or lack there of).
- CANFib produces other educational media such as the paper on Symptoms and the necessity of checking with one’s specialist rather than assuming they are side effects of a new drug.
Standard Survey Project
Project partners are furnished with the results of the CANFib Quarterly Standard Survey Project, an extensive survey that covers all treatment options, examines which have been tried and which produced the best results for each respondent.
CANFib adds logos and recognition to our Website and Forums for any company assisting us in our goals.
CANFib Research Partner: 12,500.00
As well assisting with the above educational and project goals, a research Partner will also assist CANFib in carrying out more diverse activity.
Advanced Research and Data
Results of more complex studies are detailed and submitted to Research Partners in PDF with quality Power Point presentations designed for use in meetings.
Each quarter, 2 additional and more advanced research papers are produced by CANFib based on surveys of Patients within the group. The 2016 Advanced surveys and research papers focused on Industry and Patient collaborative opportunities.
Research Partners are furnished with the results of these Advanced Papers; PDF documents along with accompanying professionally produced Power Point Presentations. Based on this research, new materials are designed for members and industry based on results programs.
Example: The Study that develop a Form, that helped reduce wait times, that helped improve symptoms
A study was conducted in 2015 that revealed 8 – 10 months was the average wait time to see their GYN.
- This study revealed Patients dealt with their condition for an average of 7 years before resolve
- The study additionally revealed during this time Patients visit their Specialist an average of 8 times
- Lastly it revealed women felt their early visits are least productive as they were unprepared
It was the conclusion of CANFib that if early appointments are more productive perhaps a few visits can be eliminated as the best treatment might be chosen sooner; this might improve symptoms sooner as well.
A form was designed asking questions pertaining to symptomology. The user-friendly form submits data back to the Patient reformatted to “GYN accuracy.”
Answers such as “I use a pad every two hours” become “I bleed 7oz per day for the first two days followed by 4oz per day there after. The latter allows the GYN to quickly move to an accurate understanding of bleeding, allowing an effective path of treatment more quickly (and may very well eliminate a follow up to discuss other options where the initial treatment is not helping).
This form educates women at the same time as to the importance of being accurate and understanding their options, making the appointment faster as well (making room for more appointments in the day).
CANFib Collaborative Partner: 15,000.00
Collaborative Partners work closely with CANFib. In addition to the benefits of the Project and Research Partner a Collaborative Partner receives the following:
Exclusive Complex Research Project
CANFib conducts an extensive annual Partner Exclusive Research Survey with questions designed in collaboration solely with that Partner.
Such surveys pertain directly to the information Partners need at the time of the survey and the resulting “Partner Copyright Materials” are submitted in PDF as well as Professional PowerPoint presentations.
Partner Specific Forum Groups
CANFib develops private groups based on various aspects of Fibroids and for Collaborative Partners a special group is developed where discussion is geared toward Partner specific products. Comments and Questions can be suggested by Partners for the group should there be information that is of immediate help. At the same time any information emanating from the group in discussion (that is deemed helpful) is brought to the attention of the Partner.
Please bring any questions or comments to my attention.
Download the Printable PDF on Funding CANFib